Education and Research
to PROMOTE UNDERSTANDING
ACCELERATE THE ACCEPTANCE
OUR CHARITY HELPS THOSE PEOPLE WHO HAVE NO HOPE
The Foundation has launched four programs to engage the community and fulfill its mission:
Our flagship program aimed at providing the public with accurate, jargon-free information about the science, benefits, limitations, and possible risks of therapeutic gene medicine technology.
A critical initiative to demonstrate the economic impact of cell and gene therapies to help justify both national and international policy initiatives in support of research and clinical trial funding, efficient regulatory oversight of emerging therapies, and effective market access strategies to enable greater patient access and facilitate commercial development of these therapies
A research project to identify and prioritize the infrastructure, logistics and healthcare system requirements essential to support widespread adoption of transformative medicines.
A national program to educate and empower patients and caregivers, and engage with key stakeholders at the state level, including physicians, local and regional provider networks, state Medicaid directors and other key influencers in the rare disease community.
These programs are led by Steering Committees comprised of leading experts in the fields of patient advocacy, communications, health economics, public policy, market access, manufacturing, precision medicine, patient education and engagement. Find out more about our programs
“Gene medicine will achieve its vast potential only when the public, patients, and caregivers understand and accept it as a safe and effective therapeutic option.”
Stewart Parker, Board Chairperson for the ARM Foundation for Cell & Gene Medicine