DONATE NOW
In Foundation News

Patient Group Leader Workshop

Sign up to attend the Patient Group Leader Workshop hosted by the ARM Foundation for Cell & Gene Medicine on Tuesday, February 25, 2020 from 9:00 a.m. – 11:30 a.m. at the Eaton Hotel in Washington DC.

This workshop, for patient organization leaders, will give you a chance to explore resources designed to educate your disease communities about cell and gene medicine.

Space is limited to 70 attendees-reserve your spot today. Read the invitation here.

Here is how we plan to spend our time together (we welcome your input on shaping the agenda):

Agenda

Pre-Meeting:  Complete a questionnaire (forthcoming) to help make our time together more productive and tailored to your needs
8:30 – 9:00 a.m. Breakfast available
9:00 – 9:45 a.m. Welcome

Presentation of new educational resources

–        HealingGenes.org

–        Understanding Cell & Gene Therapy Clinical Trials

–        “Equipped to Inform” Patient Advocate Toolkit

–        Highlights of resources from other organizations

9:45 – 10:30 a.m. Panel discussion of patient organization leaders “ahead of the curve” on educating their disease communities about cell and gene medicine to share their experience and offer helpful advice
10:30 a.m. Workshop

Facilitators with experience developing educational resources for their community and/or test drivers of the “Equipped to Inform” toolkit will help guide table discussions as patient group leaders:

–        Explore the new cell and gene medicine educational resources

–        Experiment with the digital toolkit

–        Ask questions and provide feedback

–        Work on a game plan for their respective organizations

11:30 a.m. Close
If your organization is interested in participating in the Workshop:
– Please register here
– Feel free to book your hotel on our reserved room block here using reservation code ARB23A
– Watch for an online survey to complete before the meeting

Leave a Comment

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>