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Gene Medicine Education

This multi-year program began in 2018 with extensive market research on public and patient/caregiver perceptions and attitudes about gene medicine. It will provide the public with accurate, jargon-free information about the science, benefits, limitations, and possible risks of therapeutic gene medicine technology.  What’s more, this program will support news and social media influencers as they cover gene medicine in a more balanced way with less emphasis on the sensational.

Planned program activities and content include:

  • Compelling, clear illustrations that summarize the science
  • Science briefings for journalists and policymakers
  • Fact sheets and information kits for patient advocacy groups and medical societies
  • Social media campaign on the value of gene medicine
  • Public service announcements
  • Speaking engagements and calls to participate in conferences and events